Do you think that you should be on the TV show "House" and think, "hey, I need that doctor!" Well, this is the blog for you. Topics and links such as Fibromyalgia, PCOS, CFS, Autism, and various cancer's.
Meet The Contributors
Mandy ~ I am a stay at home mom who has been on a medical roller coaster ride going from doctor to doctor trying to figure out what is wrong with me. All of the doctors agreed that there is something medically wrong with me, they just don't know what... Basically, just about every time that I go to the doctor, I wind up with a new diagnosis. It is very frustrating. I hope that some of these links will maybe help you or lead you in the right direction.
Ferd ~ I have had the honor and pleasure of practicing Internal Medicine for over 25 years. I am now enjoying sharing my thoughts and experience in the blogosphere in a number of ways. I am grateful to Mandy for including me on her excellent blog, Texas Medical Freak!
Susie over at Soul-To-Soul aka my sister Stevie Ray Vaughan junkie recently tagged me. Now I am supposed to list either six boring or quirky things about me. Then pick some other bloggers to continue the circle. I usually don't like being tagged but, since it is Susie, I will play along. Hopefully this will help with my brain fog/writers block?
Like Susie, I thought that school was a social event, who knew that it wasn't =) I did pass most of the classes that I really liked with A's and B's but, the rest...were by the skin of my teeth. I also passed this on to my daughter (genetically) her kindergarten teacher called me the first week of school and told me that "your daughter talks entirely too much!" Needless (and proud) to say, my daughter graduated in the top 25% of her 5A rated class. It took her until her Jr. year of high school to get above a "N" on her conduct grade.
My wonderful husband looks like Johnny Depp’s older blue eyed brother.
I am an Aquarian who attracts Cancer’s but, I prefer June Cancer’s over the July variety.
If my husband and I had been born in the late 40’s to early 50’s and not the 60’s we would have been complete flower power hippies.
I have an eclectic collection of music (Blues, Rock, Reggie. R&B, Metal and yes even some Country) but, at heart I am a metal head.
I am not a big on sports but…I do love a good Hockey game and you can even through in a fight or even a game with a bunch of fouls so that they get thrown into the penalty box. Don’t get me wrong though, I am in no way “a Hockey mom with lipstick.” I just like to go to the games.
Today, I found this on Angelika's Other Blog she is an Investor. Turns out that I am a philanthropist. I never thought of it that way but, I have always wanted to set up a non-profit to help parents of autistic and other disabled children get all of the help that they truly deserve. Then, I would give money to various researchers to come up with a cure (ie. Brest Cancer, Autism, Parkinson's, Alzheimer's, Fibromyalgia and others.
Back on the 15th, I did a post on Under Diagnosed Thyroid Disorders ~ Learning Disabilities ~ Fibromyalgia. Since then I have been back to the endocrinologist (I have to go ever three months to check on the cancer). First we went over my labs, which were the best that they have been in years! My white count usually runs between 12 and 14 but, this time it was 9.7. Vitamin D and Calcium are finally normal too. My T4 was a little high but, for the first time since my youngest was born I am starting to loose weight! Yea!!! So, she is leaving me on the Synthroid dose that I am on unless I loose 5 more pounds. Best of all my TSH was 0.005, normally this would not be good but for a thyroid cancer patient it is really good. Your TSH level comes from what your pituitary gland thinks that your thyroid is doing. Next we talked about my youngest with prior low thyroid levels. The endo said that due to the strong family history of thyroid problems, my thyroid cancer and my great-grandmother’s thyroid cancer that we do need to monitor him very closely and treat if he is low. She also said that with all of the family history, he has a greater risk of developing Hashimoto’s. Hashimoto’s or Hashi is an auto-immune disease that makes your thyroid attack itself. Ahhh, not what a mother (with auto-immune issues herself) wanted to hear. So, the next week I took him to our family physician and she ran all of the thyroid tests including the antibody test for Hashi. Luckily, his levels were up since the last time we checked and he was negative for the Hashi. We will just have to keep an eye on him from now on. While we were there, I got a prescription for Chantix. I have tried everything to quit smoking. Now, on my 4th day on Chantix I am still smoking but cut back to 15 per day and the urge to smoke is not as great. One thing that I have learned about Chantix is you really need to eat before you take it. The first day, I just had a snack and it really made my stomach upset. It also makes me a little sleepy, hopefully that will go away soon. I have also heard from other users that it will make you have strange dreams. I have had some but, nothing to bizarre. Let me know if you have tried Chantix and how it worked for you.
Last night, I had trouble sleeping so I came down to watch some TV. While flipping through 500+ channels of nothing, I came across the Larry King show. Midway through the show, the topic was on Michael Savage on Autism Fraud. I had never heard of Michael Savage, he is a conservative talk radio host. On his July edition of his show he claimed that autism is “a fraud, a racket.” Well, being a mother of an autistic child, this did not help my sleep issue one bit! Here is a clip from the show.
Clearly, he does not have a child or close family member with autism. Here is one of his quotes that I found on MediaMatters.org among other sources. Autism is “a fraud, a racket. …I’ll tell you what autism is. In 99 percent of the cases, it’s a brat who hasn’t been told to cut the act out. That’s what autism is. What do you mean that they scream and they’re silent? They don’t have a father around to tell them, ‘Don’t act like a moron. You’ll get nowhere in life. Stop acting like a putz. Straighten up. Act like a man. Don’t sit there crying and screaming, idiot.’” This reminds me of a time when I was pregnant with my youngest and I was the grocery store with my daughter and my autistic son. I had been working all day (I was still working full-time then) and the kids had been at the sitters. I avoided taking my son to the grocery store whenever possible, he did not like going and almost always had a meltdown of some sort. My husband was working on a project; otherwise he would have been watching him. Looking back, I think that it was either the lights or the humming of the refrigerator cases that set him off? Anyway, back to the grocery store. Almost as soon as we got in the store, he started throwing a fit. Since we had to get some groceries, we tried to ignore it and just get done what needed to be done. When we were just about finished shopping we were stopped by a man (a redneck in every since of the word), he looked at me and said “It looks like someone needs their britches busted!” I was completely taken off guard. Completely irritated with the entire situation and not to mention pregnant and hormonal, I did something that I shouldn’t have but…I did. I looked at him, pointed my finger directly in his redneck face and said “You…need to mind your own damn business!!!” His first reaction was just a dumb shocked look on his face, like lady I know you just didn’t tell me off. Then, he looks at my daughter and says “no wonder he acts like that.” I had never done that before and I haven’t done it since. But it seems to me that this redneck and Michael Savage are cut from the same cloth… Below is a clip of his show.
This one is from a later show.
In one of the clips he says that this is some kind of racket for funding for social services (such as Medicaid) and extra services in school. As long as our son was living with us, he never got any extra services our private medical insurance and our money paid for everything. As far as school goes…that debate is still up in the air since Texas school are one of the worst as far as Special Education goes. Then he goes on about how now autism is not just autism any more that it is now called “autism spectrum disorders.” Well, here is the definition of ASD’s from the National Institute of Mental Health.
Now, do I think that there are children over diagnosed with autism and other disorders? Yes, I do but I also believe that there are just as many if not more under diagnosed with autism. It wasn’t until my son was 7-years-old before he was diagnosed with autism. It is not that he wasn’t autistic before that; he just wasn’t the typical non-verbal autistic that is the “Kanner autistic.” He has always been autistic. “Normal” babies do not need to be tightly wrapped in a blanket (like they do in the hospital), put in a swing (without the swing being turned on) and then a vacuum cleaner be turned on for him to go to sleep. That is not something that a non-autistic parent would ever have to do. Most babies would rather be cuddled and rocked to sleep. My view is that people like the redneck in the grocery store, Michael Savage and others like them just, need to shut up about things that they know nothing about!
I have been working on this post since last week. I am beginning to think that maybe all of these things due tie together (Thyroid, LD’s and Fibro). As my regular readers know I was diagnosed with Follicular Thyroid Cancer three years ago. The first time that I remember having my thyroid levels (TSH levels) were tested was shortly after my last child was born and I was complaining about fatigue and hot flashes. Each time that I was tested, the test came back that my TSH levels were in “low-normal” range and I was never treated. At least not until a nodule showed up on a CT scan, then a biopsy was ordered and showed that I needed surgery to determine if it was indeed cancer and what type. Although, I have never been diagnosed with Dyslexia, I do think that I have it. I am sure this does not help with the brain fog from the Fibro or getting this post finished.
Last Monday, I was on Wellsphere.com and found this post simply titled “Thyroid” by Dr. Paul V. You can click here to read the post and the entire conversation.In one of my questions I asked, “Also, at what age should an abnormal thyroid be treated in a child with a strong family history of thyroid problems?" The reason that I asked was about two years ago, the doctor tested my youngest for thyroid issues and some other things. Everything came back fine except for his thyroid which came back “low-normal”. This didn’t surprise me because of my thyroid issues, several of my relatives have thyroid problems and just about everyone on my husband’s side of the family has thyroid problems. I guess the poor thing just didn’t have a chance, having a normal thyroid.This was Dr. Paul V’s answer to my question about treating children with abnormal thyroid, “As far as children go, with that history you should get periodic lab tests. If the children become symptomatic, or the lab values are a little off, you can do some nutritional things that will help quite a bit. Important because thyroid is linked to IQ and development.” I had no idea that the two were linked. Luckily, even though my son is dyslexic his IQ is quite high. So, I got to looking and I was surprised to find that there is a link to LD’s and Dyslexia with thyroid problems (You can find all of the links at the end of this post).
I really don’t understand why doctor’s today are so reluctant to treat a so-called “low-normal” thyroid? Years ago, everyone was on thyroid medication? It took me years to find a doctor that was willing to treat me, she waited though until after we found out for sure that my nodule was indeed cancerous. Now, without a thyroid, I have to be treated. I did a search on “complications in not treating hypothyroidism” and one of the articles that I found was on MayoClinic.com. The complications listed were Goiter (a.k.a. nodule), Heart problems, Mental health issues (depression), Myxedema, Infertility, and finally Birth defects. I had two out of the six, the goiter and infertility. As far as the infertility goes my PCOS did not help matters. I know, I have three children but…there are 8 years between the first two and 5 years between #2 and #3.
I also found a new community called Rareshare for patients, families and health care professionals dealing the rare disorders. Here I found a group for Fibromyalgia and there I found a woman who blogs about Fibro. Her blog is called FibroFix. While searching her blog I found an article on thyroid and the link to Fibro, here. Then I also found on Chiropractic & Nutrition Wellness Center, this is a really good article on the subject.
Are all of these linked? I think that yes, it is a part of it. This is just a little FYI, I will leave it up to you to come up with your own conclusion.
If you are not sure what a word is anywhere on my blog, "double click" on a word and The Free Dictionary page will pop up and give you the meaning of the word.