Update To My Last Thyroid Post

Back on the 15th, I did a post on Under Diagnosed Thyroid Disorders ~ Learning Disabilities ~ Fibromyalgia. Since then I have been back to the endocrinologist (I have to go ever three months to check on the cancer). First we went over my labs, which were the best that they have been in years! My white count usually runs between 12 and 14 but, this time it was 9.7. Vitamin D and Calcium are finally normal too. My T4 was a little high but, for the first time since my youngest was born I am starting to loose weight! Yea!!! So, she is leaving me on the Synthroid dose that I am on unless I loose 5 more pounds. Best of all my TSH was 0.005, normally this would not be good but for a thyroid cancer patient it is really good. Your TSH level comes from what your pituitary gland thinks that your thyroid is doing.
Next we talked about my youngest with prior low thyroid levels. The endo said that due to the strong family history of thyroid problems, my thyroid cancer and my great-grandmother’s thyroid cancer that we do need to monitor him very closely and treat if he is low. She also said that with all of the family history, he has a greater risk of developing Hashimoto’s. Hashimoto’s or Hashi is an auto-immune disease that makes your thyroid attack itself. Ahhh, not what a mother (with auto-immune issues herself) wanted to hear. So, the next week I took him to our family physician and she ran all of the thyroid tests including the antibody test for Hashi. Luckily, his levels were up since the last time we checked and he was negative for the Hashi. We will just have to keep an eye on him from now on.
While we were there, I got a prescription for Chantix. I have tried everything to quit smoking. Now, on my 4th day on Chantix I am still smoking but cut back to 15 per day and the urge to smoke is not as great. One thing that I have learned about Chantix is you really need to eat before you take it. The first day, I just had a snack and it really made my stomach upset. It also makes me a little sleepy, hopefully that will go away soon. I have also heard from other users that it will make you have strange dreams. I have had some but, nothing to bizarre.
Let me know if you have tried Chantix and how it worked for you.

Under Diagnosed Thyroid Disorders ~ Learning Disabilities ~ Fibromyalgia

I have been working on this post since last week. I am beginning to think that maybe all of these things due tie together (Thyroid, LD’s and Fibro). As my regular readers know I was diagnosed with Follicular Thyroid Cancer three years ago. The first time that I remember having my thyroid levels (TSH levels) were tested was shortly after my last child was born and I was complaining about fatigue and hot flashes. Each time that I was tested, the test came back that my TSH levels were in “low-normal” range and I was never treated. At least not until a nodule showed up on a CT scan, then a biopsy was ordered and showed that I needed surgery to determine if it was indeed cancer and what type. Although, I have never been diagnosed with Dyslexia, I do think that I have it. I am sure this does not help with the brain fog from the Fibro or getting this post finished.

Last Monday, I was on Wellsphere.com and found this post simply titled “Thyroid” by Dr. Paul V. You can click here to read the post and the entire conversation. In one of my questions I asked, “Also, at what age should an abnormal thyroid be treated in a child with a strong family history of thyroid problems?" The reason that I asked was about two years ago, the doctor tested my youngest for thyroid issues and some other things. Everything came back fine except for his thyroid which came back “low-normal”. This didn’t surprise me because of my thyroid issues, several of my relatives have thyroid problems and just about everyone on my husband’s side of the family has thyroid problems. I guess the poor thing just didn’t have a chance, having a normal thyroid. This was Dr. Paul V’s answer to my question about treating children with abnormal thyroid, “As far as children go, with that history you should get periodic lab tests. If the children become symptomatic, or the lab values are a little off, you can do some nutritional things that will help quite a bit. Important because thyroid is linked to IQ and development.” I had no idea that the two were linked. Luckily, even though my son is dyslexic his IQ is quite high. So, I got to looking and I was surprised to find that there is a link to LD’s and Dyslexia with thyroid problems (You can find all of the links at the end of this post).

I really don’t understand why doctor’s today are so reluctant to treat a so-called “low-normal” thyroid? Years ago, everyone was on thyroid medication? It took me years to find a doctor that was willing to treat me, she waited though until after we found out for sure that my nodule was indeed cancerous. Now, without a thyroid, I have to be treated. I did a search on “complications in not treating hypothyroidism” and one of the articles that I found was on MayoClinic.com. The complications listed were Goiter (a.k.a. nodule), Heart problems, Mental health issues (depression), Myxedema, Infertility, and finally Birth defects. I had two out of the six, the goiter and infertility. As far as the infertility goes my PCOS did not help matters. I know, I have three children but…there are 8 years between the first two and 5 years between #2 and #3.

I also found a new community called Rareshare for patients, families and health care professionals dealing the rare disorders. Here I found a group for Fibromyalgia and there I found a woman who blogs about Fibro. Her blog is called FibroFix. While searching her blog I found an article on thyroid and the link to Fibro, here. Then I also found on Chiropractic & Nutrition Wellness Center, this is a really good article on the subject.

Are all of these linked? I think that yes, it is a part of it. This is just a little FYI, I will leave it up to you to come up with your own conclusion.

Learning Disabilities Association of America

Dyslexia Research Institute

Thyroid Foundation of Canada

University of Maryland Medical Center

MayoClinic.com

Rareshare.org

Chiropractic & Nutrition Wellness Center

Freaky Friday Medical Fact ~ Thyroid Cancer

Freaky Friday Medical Fact ~ Thyroid

January is thyroid awareness month. For my first “Freaky Friday Medical Fact” I chose these interesting facts about thyroid cancer.

• Thyroid cancer is the most common endocrine cancer. Thyroid cancer is a cancerous tumor or growth located within the thyroid gland.
• Thyroid cancer is one of the few cancers that has increased in incidence rates over the past several years. There are expected to be 11% more new cases in 2007 than in 2006 in the United States.
• The American Cancer Society estimates that there will be about 33,550 new cases of thyroid cancer in the U.S. in 2007. Of these new cases, about 25,480 will occur in women and about 8,070 will occur in men. About 1,530 people (880 women and 650 men) will die of thyroid cancer in 2007.
• Many patients, especially in the early stages of thyroid cancer, do not experience symptoms. However, as the cancer develops, symptoms can include a lump or nodule in the front of the neck, hoarseness or difficulty speaking, swollen lymph nodes, difficulty swallowing or breathing, and pain in the throat or neck.
• There are several types of thyroid cancer: papillary, follicular, medullary, anaplastic, and variants.

Several years ago I was diagnosed with Follicular thyroid cancer. As far as cancers go and thyroid cancer and specifically, follicular thyroid cancer is one of the most treatable cancers. I had stage II verging on stage III, the cancer had spread outside the thyroid but it had not spread into the lymph nodes. The treatment was a total thyroidectomy followed with radioactive iodine therapy. For more thyroid cancer information either click on this link Thyroid Cancer Survivors.

Medical Googlers – Is There Really A Need For Them?

Recently, I was sent an email about an article from Time magazine’s medical writer, Dr. Scott Haig. In the article “When the Patient Is a Googler,” he complains about one of his patients who is a “medical googler.” He did not like the fact that she was Googling information about her condition while he was talking with (or to) her on the phone. To make matters worse, before her appointment with him she researched his medical information and background. How dare she…If doctors would be more open minded, less condescending and believe in their patients more, there wouldn’t be a need for all of us “medical googlers.”

This all goes back to my last post Physicians And Hospitals Rating System. Correct me if I am wrong but there is a Patients Bill of Writes. We as patients have ever rite to research our medical conditions along with the doctors that treat us. Don’t get me wrong there are a lot of really great, caring and knowledgeable doctors out there. I think that one of the biggest problems is that the medical profession has become so splintered and specialized. Your family doctor is no longer a “one stop shop.” Things that they used to treat they send you out for; x-rays, lab work, sutures, etc.

Take me and my own experience with; PCOS, FM, CFS and Thyroid cancer. It took nine years and countless doctors to get a diagnosis. All of them (excluding the ones from recent years) looking at me like “this woman is nuts!” I make a lot of reference to the TV show “House” as much as I love the show watch the show religiously, just in the hope that they do a show on me. I would never go to a doctor like Dr. Gregory House (aka Hugh Laurie), it would be nice to have a doctor like that with a better bedside manor.

Photo thanks to flicker