Meet The Contributors

Mandy ~ I am a stay at home mom who has been on a medical roller coaster ride going from doctor to doctor trying to figure out what is wrong with me. All of the doctors agreed that there is something medically wrong with me, they just don't know what... Basically, just about every time that I go to the doctor, I wind up with a new diagnosis. It is very frustrating. I hope that some of these links will maybe help you or lead you in the right direction.

Ferd ~ I have had the honor and pleasure of practicing Internal Medicine for over 25 years. I am now enjoying sharing my thoughts and experience in the blogosphere in a number of ways. I am grateful to Mandy for including me on her excellent blog, Texas Medical Freak!

Wednesday, October 15, 2008

Really Really Getting Stressed Now

So far today, I have been on the phone with law firm after law firm after law firm and I am starting to feel like this picture. Mostly I am getting nope, sorry I can’t help you… A few have said that if I send them the documents from the judge that they will look over them. At this point I think that I would rather be dealing with the IRS than SS.

Anyway, on the updates since my last post. Monday, I had to go to the dentist to get two teeth fixed that I have cracked (broken) from grinding my teeth (three more to go). I have a night guard that I wear most of the time but, some times I get a brain fart and forget. That’s fibro brain for you. Later that night my dad called and told me that my grandmother had been taken to the ER because she thought that she was having a major gall bladder attack. Turn out they admitted her thinking that there was some blockage going on with her gall bladder. My grandmother is the original medical freak, she has lived with what turned out to be PNH (Paroxysmal Nocturnal Hemoglobinuria). She has had this all of her life but, it was not diagnosed until about 30 years ago.

Yesterday, I went to my Rheumatologist. When they took my vitals my blood pressure was 145/93 which shocked me, my normal blood pressure is 118/70-80 something if not lower. I am not sure if this is from stress or my only other thought could be that I have recently lost about 10 pounds and my Synthroid is to high. I go to the endocrinologist on Friday. Anyway, once the Rheumatologist was in the room he asked me if my social security had gone through yet. I told him no, and his response was that he did not agree and that I could not work. Mainly due to the muscle pain and the major brain fog. He seemed to think that the mystery kidney/not kidney infection had to do with the auto-immune associated with Fibro. He didn’t think that it was a kidney infection but, he did think that there was some kind of infection some where. After being poked and prodded he wound up writing me another script for Lasix.

Then as if all of this was not enough to deal with I got another call from my dad. The hospital had done a scan on my grandmother (not sure if it was a CT or a CAT?) and they found a tumor on her gall bladder side of the pancreas. So, tomorrow they are going to do a biopsy to rule out Pancreatic Cancer. My grandmother is 88 ½ years old, has the PNH and has to take Warfarin. So, I am trying to stay positive that it will not be Pancreatic Cancer but, I don’t think that the chances are good.

Then for those of you who have been reading my blog and know about my crazy neighbor #2, he has been ranting and raving for almost a month now. Me and several of our neighbors have called 911. Most of the calls have been answered with, "he seems fine now". That's a laugh! Then last Wednesday or Thursday, the police came out three separate times and almost took him in the last time which was around 9pm. Then the next day, first thing he started in again. I finally wound up calling 911 around noon or so. Finally........they took him in to get committed for observation. I have since found out that a judge is having him transferred to one of our state mental hospitals. So, my crazy neighbor issue is resolved for at least 6 months.

I swear, when it rains it pours…


Kerry said...

Hi Mandy, What a lot on your plate. Think you're handling it well if you're looking like the woman in the pic., she has her hair, she hasn't pulled it all out
from frustration.

About your bp at the doctor. My bp is also usually low, but when I go to the doc it goes straight up. All these years of tough doc. experiences have brought on quite a case of doc. phobia. When I get home, my bp has settled down to normal.

But I think you are right on track that it could be your thyroid and should have it checked, especially with your weight loss. I recently lost thirty pounds and went hyper-thyroid. We readjusted my synthroid dose. Soon after my thyroid went too low and we had to bring the dose up a bit. I'm having to be patient with my thyroid as it adjusts to regulating the weight change.

I'm sending wishes that your Grandma is okay and for as much calm as possible for you cope with all that is going on. Sincerely, Kerry

Mandy said...

Kerry ~ Thanks for all of the support =) I requested a refill on my Synthroid and all that she (the Endo) approved was 200mcg (it had been 250mcg) so, I bet that is the cause of the high blood pressure. It has never been that high. I will find out for sure tomorrow, at my appointment.

=^./.^= M

Ferd said...

My thoughts are with you and your grandma, Mandy.
May you have the strength to deal with whatever comes your way.

Mandy said...

Ferd ~ Thank you. I am usually pretty tough but, in times like these I do tend to get a bit mushy.

Things like this are never easy to deal with.

Thanks again,


The Healthy Mom said...

My thoughts and prayers are with you and your grandmother. I hope everything gets better. At least you don't have to worry about the crazy neighbor for a while. Do something nice for yourself to get your mind off of things.

Mandy said...

The Healthy Mom ~ Thank you so much. It is really good about the crazy neighbor, he stressed the entire house. Apparently he has visual hallucinations and he thinks that he is God. I really don't he will be back any time soon. I think that I will go get a hair cut this week, I just love fresh hair cuts and especially getting my hair shampooed.