A Mothers View On Autism And Michael Savage

Last night, I had trouble sleeping so I came down to watch some TV. While flipping through 500+ channels of nothing, I came across the Larry King show. Midway through the show, the topic was on Michael Savage on Autism Fraud. I had never heard of Michael Savage, he is a conservative talk radio host. On his July edition of his show he claimed that autism is “a fraud, a racket.” Well, being a mother of an autistic child, this did not help my sleep issue one bit! Here is a clip from the show.



Clearly, he does not have a child or close family member with autism. Here is one of his quotes that I found on MediaMatters.org among other sources. Autism is “a fraud, a racket. …I’ll tell you what autism is. In 99 percent of the cases, it’s a brat who hasn’t been told to cut the act out. That’s what autism is. What do you mean that they scream and they’re silent? They don’t have a father around to tell them, ‘Don’t act like a moron. You’ll get nowhere in life. Stop acting like a putz. Straighten up. Act like a man. Don’t sit there crying and screaming, idiot.’” This reminds me of a time when I was pregnant with my youngest and I was the grocery store with my daughter and my autistic son. I had been working all day (I was still working full-time then) and the kids had been at the sitters. I avoided taking my son to the grocery store whenever possible, he did not like going and almost always had a meltdown of some sort. My husband was working on a project; otherwise he would have been watching him. Looking back, I think that it was either the lights or the humming of the refrigerator cases that set him off? Anyway, back to the grocery store. Almost as soon as we got in the store, he started throwing a fit. Since we had to get some groceries, we tried to ignore it and just get done what needed to be done. When we were just about finished shopping we were stopped by a man (a redneck in every since of the word), he looked at me and said “It looks like someone needs their britches busted!” I was completely taken off guard. Completely irritated with the entire situation and not to mention pregnant and hormonal, I did something that I shouldn’t have but…I did. I looked at him, pointed my finger directly in his redneck face and said “You…need to mind your own damn business!!!” His first reaction was just a dumb shocked look on his face, like lady I know you just didn’t tell me off. Then, he looks at my daughter and says “no wonder he acts like that.” I had never done that before and I haven’t done it since. But it seems to me that this redneck and Michael Savage are cut from the same cloth… Below is a clip of his show.



This one is from a later show.



In one of the clips he says that this is some kind of racket for funding for social services (such as Medicaid) and extra services in school. As long as our son was living with us, he never got any extra services our private medical insurance and our money paid for everything. As far as school goes…that debate is still up in the air since Texas school are one of the worst as far as Special Education goes. Then he goes on about how now autism is not just autism any more that it is now called “autism spectrum disorders.” Well, here is the definition of ASD’s from the National Institute of Mental Health.

Now, do I think that there are children over diagnosed with autism and other disorders? Yes, I do but I also believe that there are just as many if not more under diagnosed with autism. It wasn’t until my son was 7-years-old before he was diagnosed with autism. It is not that he wasn’t autistic before that; he just wasn’t the typical non-verbal autistic that is the “Kanner autistic.” He has always been autistic. “Normal” babies do not need to be tightly wrapped in a blanket (like they do in the hospital), put in a swing (without the swing being turned on) and then a vacuum cleaner be turned on for him to go to sleep. That is not something that a non-autistic parent would ever have to do. Most babies would rather be cuddled and rocked to sleep. My view is that people like the redneck in the grocery store, Michael Savage and others like them just, need to shut up about things that they know nothing about!

Under Diagnosed Thyroid Disorders ~ Learning Disabilities ~ Fibromyalgia

I have been working on this post since last week. I am beginning to think that maybe all of these things due tie together (Thyroid, LD’s and Fibro). As my regular readers know I was diagnosed with Follicular Thyroid Cancer three years ago. The first time that I remember having my thyroid levels (TSH levels) were tested was shortly after my last child was born and I was complaining about fatigue and hot flashes. Each time that I was tested, the test came back that my TSH levels were in “low-normal” range and I was never treated. At least not until a nodule showed up on a CT scan, then a biopsy was ordered and showed that I needed surgery to determine if it was indeed cancer and what type. Although, I have never been diagnosed with Dyslexia, I do think that I have it. I am sure this does not help with the brain fog from the Fibro or getting this post finished.

Last Monday, I was on Wellsphere.com and found this post simply titled “Thyroid” by Dr. Paul V. You can click here to read the post and the entire conversation. In one of my questions I asked, “Also, at what age should an abnormal thyroid be treated in a child with a strong family history of thyroid problems?" The reason that I asked was about two years ago, the doctor tested my youngest for thyroid issues and some other things. Everything came back fine except for his thyroid which came back “low-normal”. This didn’t surprise me because of my thyroid issues, several of my relatives have thyroid problems and just about everyone on my husband’s side of the family has thyroid problems. I guess the poor thing just didn’t have a chance, having a normal thyroid. This was Dr. Paul V’s answer to my question about treating children with abnormal thyroid, “As far as children go, with that history you should get periodic lab tests. If the children become symptomatic, or the lab values are a little off, you can do some nutritional things that will help quite a bit. Important because thyroid is linked to IQ and development.” I had no idea that the two were linked. Luckily, even though my son is dyslexic his IQ is quite high. So, I got to looking and I was surprised to find that there is a link to LD’s and Dyslexia with thyroid problems (You can find all of the links at the end of this post).

I really don’t understand why doctor’s today are so reluctant to treat a so-called “low-normal” thyroid? Years ago, everyone was on thyroid medication? It took me years to find a doctor that was willing to treat me, she waited though until after we found out for sure that my nodule was indeed cancerous. Now, without a thyroid, I have to be treated. I did a search on “complications in not treating hypothyroidism” and one of the articles that I found was on MayoClinic.com. The complications listed were Goiter (a.k.a. nodule), Heart problems, Mental health issues (depression), Myxedema, Infertility, and finally Birth defects. I had two out of the six, the goiter and infertility. As far as the infertility goes my PCOS did not help matters. I know, I have three children but…there are 8 years between the first two and 5 years between #2 and #3.

I also found a new community called Rareshare for patients, families and health care professionals dealing the rare disorders. Here I found a group for Fibromyalgia and there I found a woman who blogs about Fibro. Her blog is called FibroFix. While searching her blog I found an article on thyroid and the link to Fibro, here. Then I also found on Chiropractic & Nutrition Wellness Center, this is a really good article on the subject.

Are all of these linked? I think that yes, it is a part of it. This is just a little FYI, I will leave it up to you to come up with your own conclusion.

Learning Disabilities Association of America

Dyslexia Research Institute

Thyroid Foundation of Canada

University of Maryland Medical Center

MayoClinic.com

Rareshare.org

Chiropractic & Nutrition Wellness Center

Arte Y Pico Award

Recently, Sue from Creaky Easel nominated me for the Arte Y Pico award. If you have not been to the Creaky Easel, you really need to go. Sue has some wonder art work!
Upon winning this award you are tasked with the following rules...

1. You have to pick 5 blogs that you consider deserve this award for their creativity, design, interesting material, and also for contributing to the blogging community, no matter what language
2. Each award has to have the name of the author and also a link to his or her blog to be visited by everyone.
3. Each award winner has to show the award and put the name and link to the blog that has given her or him the award itself.
4. Award-winner and the one who has given the prize have to show the link of "Arte y Pico" blog, so everyone will know the origin of this award. http://arteypico.blogspot.com/.
   

Here is my list in no particular order.

• Soul-To-Soul ~ Another one of my favorite Entrecard artist. Sue does wonderful pencil sketches of a variety of subjects but, my all time favorite subject that she does is Stevie Ray Vaughan. Update ~ At the time that I originally posted this, I could not find my favorite SRV sketch but Sue was kind enough to send me the link. Here it is Going To Austin.
  
• Crazy Medical Cases ~ Regular readers know Ferd (my other Medical writer) but, I am not sure that you may know his other persona? On his blog “Crazy Medical Cases”, Ferd has a unique knack for merging whit, humor and sometimes very strange pictures in to his stories. One of his latest is about Parkinson’s. “Selective Hearing” is a must read for anyone feeling bad about a chronic illness or disease.
• My Autism Insights ~ I just recently found this blog. Andrea is a mother of an autistic child. She has great autism links and reviews.
• Telling It Like It Is ~ Lin has a unique parenting blog with lots of great parenting tips.
  

Freaky Friday ~ Dealing With Crazy Neighbors

I have not done a “Freaky Friday” post in quite a while. Recently, I was invited to be a featured blogger on Wellsphere.com when they ran across my Freaky Friday ~ Will Wonders Never Cease.

The following topic is on Schizophrenia, it and other mental health disorders, are serious illnesses and should be treated. This post is not meant to make fun of anyone except for the two people mentioned in this post. You will find helpful links and articles at the end of this post.

Now, to dealing with crazy neighbors, I don’t know how we wound up with two…and I really don’t have any answers to this problem (wish that I did). My daughter has always called our neighborhood the “Twilight Zone” because of all the strange people in our neighborhood. We have had our house for about 12 years, almost from day 1 we had problems with the woman across the street. She has Schizophrenia, her main issue has been that she does not like people parking on her side of the street. I could understand this if her house faced ours but, you see she has a corner lot and our house faces hers. She has major issues with people parking on the street on the side of her house (or in front). In the past she has gone as far as calling the police on our friends and family for parking there (or, throwing eggs and putting the water sprinkler over the fence so that they cannot get into their cars). I am not talking the “non-emergency number” but 911. The police have come out I don’t know how many times and every time she tries her hardest to convince them that her property line extends 6 feet into the street. We and the entire neighborhood have dealt with her for years. Overall, she is pretty harmless other than the fact that she loves to call 911 for just about anything. Good news though finally about four years ago she started leaving us alone along with pretty much everyone else. Well, except for the second crazy neighbor.

The second crazy neighbor lives directly next to us, he too is schizophrenic. Although, he pretty much leaves us alone, we still have to put up with his antics. His main issues are with basically anyone of color (any color). When he first moved in, he had a run in with neighbor #1, over the parking issue. One day I happened to look out the window and to my surprise, I saw neighbor #1 walking across the street headed my direction. At first I thought that she was headed to our house, then I saw that she was headed to neighbor #2’s house. With her cell phone in hand (and I am sure with 911 pre-dialed on her phone) she started up his steps. The next thing that I knew, I heard neighbor #2 yelling (at the top of his lungs) at neighbor #1. I thought “oh, geeze!” what is he thinking??? So, I call 911. When the police come out they first stop at neighbor #1’s house and talk to her (by now they know the drill) then they come over to neighbor #2’s house…and what does he do? He starts yelling at the police, loud enough that I can hear him in my house over the TV. All of this was about a year and a half to, two years ago. Then out of nowhere, about six months ago he starts in on anyone and everyone of color? Yelling that he is going to kill them all, that they are all going to hell, etc. Sometimes, he even looks like he is yelling at no one? With all of this yelling and threatening, the police have not once taken him in?
Now, being a mother of a child with autism and mental health issues I know about “being a threat to yourself or others”. There has to be something that can be done about neighbor #2?
Here are some links and articles to understanding Schizophrenia:

• Medicinenet
• NIMH
• WebMD

And finally on a lighter note, a music video of the song that I think of every time things get crazy in my neighborhood. Metallica’s “Sanitarium” Welcome Home, somewhere that I think that #2 may need to spend some time. Metallica, please don’t sue me, I found this on YouTube. Not to mention I am a big fan =)

Long Vacation...

I have not really been on vacation, just sick and taking care of my autistic child. Quite a bit has happened since my last post. It started out with that terrible cold that was going around in mid March, my youngest and I both had it for over a week. When we finally got over that, we took a trip to see my dad and our autistic son. We had a good visit but we were still at the end of our colds.

At the end of March, I finally got a hearing for my Social Security. I applied about two years ago; got denied, hired a local Social Security Disability law firm, got denied again and then finally got the hearing with the judge. At the hearing office I had to go through security with the security guard, it was a bit like going through security at the airport. Had I known this, I would have carried my usual airport things; a tiny wallet (with my ID, bank card and insurance card), then wore a pair of Crocs. But nooo…I had a purse full of all kinds of stuff. I had to dump everything out and let them go through it, then get wanded. When we finally got to the hearing room there was the judge, court reporter, a job expert and (via the phone) the social security doctor. First the judge asked me a lot of questions about how I felt and what was wrong with me and then about my various careers. After explaining to him what I had done at my past few jobs that spanned back about 15 years, he told the “job expert” that she was no longer needed. Then came the ss doctor on the phone…first he didn’t think that my Chronic Kidney Disease is as bad as it is, then came the Chronic Fatigue Syndrome…he tried to say that it was not a “text book case” of CFS (my attorney came back with asking the doctor if there was anywhere in any of my doctor’s reports that said that I was not chronically fatigued? The ss doctor said “no”) next was the Fibromyalgia; somehow my pressure point test did not wind up in any of the reports? When the hearing finally ended, I left with no answer for my SSDI (no yes, but no “no” either)

The day after the hearing I went to see a Rhumotolist, to get diagnosed by an “expert” for the Fibro. I have been a little reluctant to see a Rhumotolist, mainly because of all of my goofy medication allergies. But, to my surprise he was really good! Due to my allergies and CKD there are a lot of pain medications that I am not able to take, he came up with Ultram which is aspirin based and does not have the compound that is in Darvocet, Percodan and most others that end in “cet”. He agreed that I do have Fibro and hopefully…this will help in my SS case.

Then finally it is the end of the school year, yea!!! My autistic son flew out to stay just a little over a month, he has been doing this since my mother passed away. With my mother gone, my dad doesn’t always have someone to watch him while he is working. Even though he is 15 and high functioning, you cannot leave him by himself. This summer, we had a really hard time with him. I think that his Psychiatrist is on the “conservative” side and does not have him medicated enough. Most of the time that he was here this time, he did not go to sleep until after 2:00 if he did sleep at all. He has always had a problem with sleeping, before we started him on medication he would “maybe” sleep for about a hour a day after the age of three and even before that he rarely took naps. It would not be so bad if he would stay in his room but, he wanders around (even outside sometimes) and gets into EVERYTHING! So, I had to say up with him and not take my evening medications most of the time he was here. By the time he left to go home, I was completely exhausted.
About getting into “EVERYTHING”, I do mean everything. He got into my husband’s clothes (he wears an adult XL and my husband wears an adult M, not sure why he does this? He even gets into my clothes???) he found my daughters artwork that she did in high school that has been missing since 2003. He likes to draw and has tons of his own paper, colored pencils and markers but, he got into and used up my brand new set of Prisma color markers. Everyone in the house’s stuff is free-reign but, he will have a fit if you touch his things. We are just about at our wits end, we have tried everything that we can think of to teach him that; you have to ask to use someone else’s things and you don’t steal. It is not that he does not have the ability to learn this but, it is like he is a clepto maniac. The things that he takes, he does not need like with the markers he had his own. Please post any suggestions or things that have worked for you if you have dealt with this or the sleep problem.